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  • neuroblastoma
    Ciara's Story
    Read Story
    ABOUT NEUROBLASTOMA
    • What is neuroblastoma
    • Fact Sheet
    LATEST TREATMENT NEWS
    • Dinutuximab Beta Updates
    • DFMO Updates
    Newly Diagnosed
    • Key Statistics
    • Causes & Risks
    • Detection, diagnosis & staging
    On Treatment
    • Treatment & side effects
    • Clinical Trials
    • Hospital Tips
    • Life Outside of Hospital
    Post Treatment
    • After treatment
    • Late Effects
    • Relapse
  • GET SUPPORT
    Raphael's Story
    Read Story
    CONNECTING WITH OTHERS
    • Online Support Group
    • Volunteer Parent Contacts
    • Bereavement Support
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    SUPPORT PACKS/SERVICES
    • Kids Activity Pack
    • Hospital Care Pack
    • Free Photoshoots for Sydney
    HELPFUL RESOURCES
    • Parent’s Guide
    • Related Support Services
    Family Stories
    • Meet Families
    • Stories of Hope
  • GET INVOLVED
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    Research into radionuclide therapy
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    Project updates from our 2020 research grant winners
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Logan’s Story

Logan was a healthy baby, eating well and enjoying day-care. However, at 11 months Logan was struggling to recover from...
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Logan’s Story

Logan was a healthy baby, eating well and enjoying day-care. However, at 11 months Logan was struggling to recover from...
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Marko’s Story

In 2018, 16-month-old Marko was diagnosed with neuroblastoma. Despite successful surgery to remove a large tumour, Marko later developed a...
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Marko’s Story

In 2018, 16-month-old Marko was diagnosed with neuroblastoma. Despite successful surgery to remove a large tumour, Marko later developed a...
Read more

Hayley’s Story

Although she experienced some milestone delays, 8-month-old Hayley was seemingly a healthy baby. However, after she developed an unusual rash...
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Hayley’s Story

Although she experienced some milestone delays, 8-month-old Hayley was seemingly a healthy baby. However, after she developed an unusual rash...
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Willow’s Story

A normal, bubbly toddler, Willow Lawton was diagnosed with neuroblastoma at the age of 2 years and 9 months. Read...
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Willow’s Story

A normal, bubbly toddler, Willow Lawton was diagnosed with neuroblastoma at the age of 2 years and 9 months. Read...
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Family Stories

Share your story

Read the stories of some of the brave children and their families affected by neuroblastoma. Thank you so much to our families for sharing their experiences and helping others going through this very difficult time. If you would like to share your story please click the button below or email us on info@nb.org.au

Luna
Family Stories
Luna's Story
In July 2023, Luna’s parents heard six little words no parent ever wants to hear, “I’m sorry, your child...
Mackenzie
Family Stories
Mackenzie's Story
Mackenzie was just two weeks old when her parents noticed her abdomen was large and firm to touch. After...
Madison_Maddie
Family Stories
Madison's Story
Monique noticed Maddie was starting to withdraw more and more from her usual activities and becoming...
Marko
Family Stories
Marko's Story
In 2018, 16-month-old Marko was diagnosed with neuroblastoma. Despite successful surgery to remove a...
Mia
Family Stories
Mia's Story
In February 2012, when Mia was only one, her mum Karina took her to the doctor. Within six hours, Mia...
Nevaeh
Family Stories
Nevaeh's Story
The arrival of Bec’s much longed for daughter, Nevaeh, was tinged with sadness. Her birth coincided with...
Nixon
Family Stories
Nixon's Story
Meet the sunny three year old who has endured more medical procedures than most people deal with in a...
Patrick
Family Stories
Patrick's Story
Patrick was born a healthy baby in August 2020, but at just eight weeks old, his parents, Kimberley Rowlings...
Noah (CHECK IS THIS RIGHT CHILD)
Family Stories
Noah's Story
Our first Run2Cure 2021 Superhero, Noah Lord is a cheerful, spirited, strong-willed 3-year-old, who has...
Oli
Family Stories
Oli's Story
After developing a limp and suffering a broken femur, Oli's parents took him to hospital. Tests revealed...
Oliver
Family Stories
Oliver's Story
Just before Oliver turned ten, the young sportsman and his loving parents Sarah and Duncan, discovered...
Raphael
Family Stories
Raphael's Story
Although Raphael was a bright and active baby, persistent breathing issues worried his mum, Kristen....
Adrian
Family Stories
Adrian's Story
After countless visits to the paediatrician, on July 4 2012, Adrian’s parents Nick and Bernadette, rushed...
Kitty
Family Stories
Kitty's Story
Kitty’s family’s world turned upside down on Tuesday 21 November 2017. The absolute last thing you expect...
Rosalie
Family Stories
Rosalie's Story - A Parent's Perspective
Rosalie was a busy mum co-running the family business when her youngest child, Jullian, developed symptoms...
Roy (CHECK THIS IS THE RIGHT CHILD)
Family Stories
Roy's story
Emma and Sam welcomed beautiful baby Roy into their lives at the very height of the 2020 COVID-19 pandemic....
Indianna
Family Stories
Indianna's Story
Indianna was diagnosed with high-risk neuroblastoma at just 12 months of age. Even while enduring high...
Ryder
Family Stories
Ryder's Story
After experiencing a limp and persistent fever that culminated in full body pain and night-sweats, three-year-old...
Isabella_Bella
Family Stories
Isabella's Story
In the month before she was diagnosed, Isabella started to lose weight, and various other symptoms started...
Dayne
Family Stories
Danye's Story
Little Danye has four brothers, one sister, a brave mum and the heart of a lion.
Evie
Family Stories
Evie's Story
In 2013, Joshua and Sarah Weir's two-year-old daughter, Evie, was diagnosed with stage 4 neuroblastoma....
Saskia
Family Stories
Saskia's Story
Just before Christmas in 2017, Stephanie and Duane took their then 22-month-old daughter Saskia to hospital,...
054-sienna-s-story-001
Family Stories
Sienna's Story
Our inspiration Sienna was born in London on 27th July 2007 and was a perfectly happy and healthy baby...
Jazmyn
Family Stories
Jazmyn's Story
Jazmyn’s life changed forever when a simple case of growing pains was revealed to be high risk childhood...
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We’re on a mission to save young lives from neuroblastoma

One of the most aggressive and underfunded childhood cancers. By funding world-class research, advocating for better access to treatments, and supporting families through every stage, we’re working toward a future where every child has the chance to grow up.

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Neuroblastoma Australia
Suite 402, 161 Walker St,
North Sydney,
NSW 2060

info@nb.org.au

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74 173 375 414