Our purpose

Better, safer, kinder treatments

Our goal is 100% survival - so every child diagnosed gets the chance to grow up and lead a long, healthy life.

Neuroblastoma is an aggressive childhood cancer, and survival rates for the aggressive types are around 50%. Today, a third of children who do survive live with long-term effects from their treatment, because the treatments themselves are so toxic and extensive.

We urgently need better, safer and kinder treatments – and the only way to achieve this is by supporting the very best research.

1

Raise awareness

Build understanding of neuroblastoma and the urgent need to support research in this area.

2

Raise vital funds

Fund outstanding cancer research into better, safer treatments for children diagnosed now and in the future.

3

Support families

Provide information and support to those affected by neuroblastoma, every step of the way.

survival rate for aggressive types of neuroblastoma

~ 0 %

average age of a child at diagnosis

0 yrs

of government cancer research funding goes to childhood cancer

< 0 %

raised for neuroblastoma research to date

$ 0 M+

What we do

Funding answers. Supporting families.

Neuroblastoma is complex, and many questions remain unanswered – what causes it, and why some children don’t respond to treatment. Research is how we find the answers.

We fund leading research

We’re committed to ensuring funds go to the most promising pre-clinical research, with robust procedures in place to direct every dollar where it matters most.

Expert-reviewed by a world-class board

Our Scientific Advisory Board – leading global experts – reviews every grant application against our goals of safer, better treatments and, ultimately, a cure.

We support families

We provide information and resources, and connect families with one another at events and through our community – so no one faces neuroblastoma alone.

Experienced leadership

Lucy Jones

FOUNDER & CEO

In 2008, Lucy and her partner Oliver moved from London to Sydney with their nine-month-old daughter, Sienna, to start a new life in Australia – full of excitement for what lay ahead. Six weeks after arriving, Sienna developed recurrent temperatures. What followed was a journey no family could have imagined — and a diagnosis that would change everything: neuroblastoma, one of the most aggressive and under-researched childhood cancers that exists.

Westfield Local Hero

Board, ANZ Children's Oncology Group (2024)

General Assembly, ACCELERATE (2024)

Sydney Children's Hospital — Consumer Committee

Associate Investigator, neuroblastoma research

How we raise funds

Powered by community

You can support our advocacy work by sharing your story, raising awareness or making a donation to help fund our work for children with neuroblastoma.

Our annual flagship fun run, bringing thousands together for neuroblastoma.

A day on the green raising funds for life-saving research.

Cook, host and fundraise — your kitchen, your way, for the cause.

★ We currently receive no government funding — every dollar comes from supporters like you

The generous support of Neuroblastoma Australia has allowed us to more rigorously test new approaches to treating children with high-risk neuroblastoma, and to provide improved individualised information to aid treatment decisions. The success of this research has also contributed to additional competitive government research funding for our neuroblastoma research.

Dr Jamie Fletcher - Children's Cancer Institute

Our families

Children diagnosed with neuroblastoma are, on average, just two years old. They don’t have a voice — and it’s so important that they have one. Get to know our incredible neuroblastoma families.

Every child deserves the chance to grow up

We can save children in the future by investing in research today. We would welcome your support to help make sure every child gets the chance they so deserve.

Our purpose​

Better, safer, kinder treatments​